The parents of RayAnn Moseley, the Pensacola child with intractable epilepsy whose story softened the hearts of reluctant lawmakers, are fighting a new battle: getting Charlotte’s Web to Florida.
The Moseleys have formed a company to apply to be one of the five medical marijuana dispensaries under the new law that allows for the cultivation of marijuana low in THC, the chemical that provides the high, and high in CBD, the one that calms seizures. They say their motives are pure: to guarantee the strain that worked miracles in Colorado is available in Florida and to avoid the risk of having to rely on imitations.
“I’m only ready to try something that’s working and is safe,” said Holley Moseley, mother of RayAnn.
But their efforts face hurdles — and critics.
The Moseleys are partnering with the Stanley Brothers, the family that went from obscure Colorado marijuana farmers to international miracle workers when the mother of Charlotte Figi used the extract of their plants to treat her daughter with intractable epilepsy. That partnership with the Moseleys, if successful, threatens to edge out others who also see business potential in Florida’s new cash crop.
At a hearing to develop the rules for growing, cultivating and dispensing the legal marijuana last week, several cannabis experts and entrepreneurs dismissed the notion that Charlotte’s Web is unique. The testimony was speculative, but presenters said it is one of several high CBD strains that could be developed to treat epilepsy.
“The Stanleys’ claim is, through trial and error, they have come across a strain that is especially effective for intractable epilepsy, but other people are saying the same thing,” said Kerry Herndon, who owns a nursery in Apopka. He said he has been approached by several people, including the Stanleys, who claim to have unique strains high in CBD and want to partner with his nursery. Story here.
Photo: Attending a workshop on marijuana rules last week were Paige Figi, mother of Charlotte who was the first child to use the low-THC strain for her epilepsy, Peyton and Holley Moseley, who have formed a company to bring the strain here, and Joel Stanley, one of the Colorado brothers who developed the "Charlotte's Web" strain. Photo: Courtesy of Ryan Wiggins Courtesy of Caring 4 Florida, the Moseley family non-profit